Inform Connect Inspire
September, 2019. The World's First Gene Therapy Clinical Trial For Glycogen Storage Disease has seen remarkable results, one year after its initial start.
It is led by Dr. David Weinstein of the University of Connecticut. Dr. Weinstein has a strong working relationship with several doctors in Canada and in collaboration, treats dozens of Canadian patients at Connecticut Children's Medical Center; the world's largest GSD Program.
The GSD gene therapy trial began on July 24, 2018. It is about to expand to other sites including Montreal Children's Hospital, with Dr. John Mitchell as its lead investigator.
Glycogen Storage Disease (Explained)
Our friends at Scandinavian Association for Glycogen Storage Disease produced an informative documentary on the topic of GSD, including interviews with some of the world's leading GSD doctors.
It is an inspiring work.
Congratulations, Dr. Marcus Landgren and your SAGSD team!
Canadian Association for Glycogen Storage Disease was founded with the hope of helping Canadian patients, parents and families affected by GSD and is an official Non-Profit with Charity Status, registered in Canada.
Your generous donation today is greatly appreciated.
All of our board members are volunteers. If you go to our How To Help page,100% of your donation can be directed towards the fund of your choice:
GSD General Fund
GSD Research Fund,
GSD Symposium Fund
Advanced Training for GSD Medical Professionals Fund
GSD Family Assistance Fund
From all of us, to all of you ... Thank You.
Positive Results for First Gene Therapy Trial For Glycogen Storage Disease 1a
So, What Is Glycogen Storage Disease?
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