The Canadian Organization for Glycogen Storage Disease (CanadianAGSD) was created to help Canadian patients and their families affected with this rare disease.
Our purposes include: supporting research which contributes to the development of diagnostic tests and therapies (in Canada); providing individuals affected with GSD and their families with access to information about the disease, its consequences and potential therapies; and educating the health care community and the public about GSD. (All of our purposes can be found in the Overview section).
Your support is both needed and appreciated. Our Board of Directors and Officers are volunteers. Canadian AGSD is an official Canadian non profit that has charity status with Revenue Canada.
#Cure GSD #BeStrongStayStrong
CLINICAL TRIALS
For information on the most recent update (May 14, 2021) regarding GSD1a Gene Therapy Clinical Trials, visit Ultragenx here.
For more information on the ongoing Phase 1/2 study of DTX401 in patients with GSDIa, please visit the study page.
So, What Is GSD?
Glycogen Storage Disease (Explained)
Our friends at Scandinavian Association for Glycogen Storage Disease produced an informative documentary on the topic of GSD, including interviews with some of the world's leading GSD doctors.
It is an inspiring work.
Congratulations, Dr. Marcus Landgren and your SAGSD team!
Inform Connect Inspire