Families supported by CAGSD

Inform · Connect · Inspire

Supporting Canadian Families Living with Glycogen Storage Disease

The Canadian Association for Glycogen Storage Disease connects patients, families, and healthcare professionals across Canada.

Our Mission

Dedicated to improving the lives of Canadians affected by GSD

"No family should face Glycogen Storage Disease alone."

Registered Canadian Charity

#GSDStrong#RareDisease#CanadianAGSD

The Canadian Association for Glycogen Storage Disease (CAGSD) is a non-profit charitable organization dedicated to improving the lives of Canadians affected by Glycogen Storage Disease. We provide education, support, and advocacy for patients, families, and healthcare professionals across Canada.

Medical research laboratory

Clinical Research & Trials

Enrolling

Beam Therapeutics

Base Editing Gene Therapy for GSD Type Ia

Location: Multiple sites

Visit here →
Phase 1/2

Moderna

mRNA Therapy for GSD Type Ia

Location: Multiple sites

Visit here →
Phase 3

Ultragenyx

DTX401 Gene Therapy for GSD Type Ia

Location: Multiple sites

Visit here →

CANADIAN AGSD SCIENTIFIC ADVISORY COMMITTEE

We are pleased to announce our volunteer committee members:

Dr. John Mitchell

Montreal Children's Hospital

Montreal, QC

Dr. Michal Inbar-Feigenberg

The Hospital for Sick Children

Toronto, ON

Dr. David Weinstein

Weinstein Rare Disease and Clinical Development Consulting

Kathy Ross, RD

Florida, United States

Help Us Support Canadian GSD Families

Your donation helps fund research, education, and community support for patients and families living with Glycogen Storage Disease.

DONATE TODAY